In your german app store for free! Coming to the US soon
MASTHAVE®
Your mastocytosis app
Your MASTHAVE® for recording your mastocytosis symptoms.
From now on you are not alone - MASTHAVE® supports you at all times!
MASTHAVE® was developed by leading experts in the field of mastocytosis to help patients document the progression of their disease.
It only takes a few minutes a day to document your symptoms and their impact on your quality of life.
Use the easy-to-understand scores to track the progression of your symptoms and complaints. This data can help you evaluate the effectiveness of your treatment, lifestyle choices, and treatment options when communicating with your physicians.
150+
1
Available coutries
Centers globally
What is mastocytosis?
Mastocytosis is a rare disease in which mast cells accumulate in various tissues of the body. It affects approximately 1 in 10,000 people and is associated with high morbidity and mortality.
Despite early successes with effective drug treatment, lifestyle control and symptom relief are still critical to the well-being of patients. It is important to identify triggers and avoid them as much as possible.
Innovative Mastocytosis App
Let MASTHAVE® help you identify your triggers and document your symptoms in everyday life.
Overview of disease course
Document your disease course and evaluate the effects of your treatment and lifestyle changes. This information can help you and your doctor make informed decisions about your treatment.
Convenient data exchange
Easily share your results with your doctor as a PDF or QR code. This facilitates information sharing and collaboration.
Continuous monitoring
Record your mastocytosis activity and possible symptom triggers on a daily basis. This will allow you to track changes in your symptoms and medication use.
Start now!
MASTHAVE® - Your Mastocytosis diary
Download MASTHAVE® for free!
Your MASTHAVE® Team
The MASTHAVE® app was developed by leading experts in the field of mastocytosis.
A digital breakthrough in the documentation of mastocytosis.
For patients, treating physicians and science.
PD Dr. Frank Siebenhaar
MD Dr. Polina Pyatilova
MD Nicole Nojarov
Jessica Karpyk
Our Partners
Frequently asked questions
How much does it cost to use the MASTHAVE app?
The MASTHAVE app is available free of charge for patients in the app stores.
Is my data secure?
No personal data is stored, your recorded data is anonymized. It is therefore not possible to identify you personally.
Do I need a Study ID and where can I get one?
The study ID is not required to use/register the app. If you have received one or more IDs from your treating physician, you can enter them.
How does my treating physician receive my data?
To ensure that you always have control over your data, there are no interfaces or automated data transfers. You can always decide who your want to share your data with. For example, you can share your report as a PDF with your doctor via email. We recommend encryptiong the PDF with a password before sending it and sending the password to the doctor separately. As a secure option, your doctor can receive the data directly on his PC at your appointment using a QR code and save it to the patient's file.
What are the questionnaires / scores?
The questionnaires are validated questionnaires (PROM - Patient Related Outcome Measures) provided by Moxie GmbH. These were previously only given to patients by physicians during treatment and for monitoring the progress of mastocytosis and are now available digitally to patients for daily support in the MASTHAVE app.
Where can I get further help with the diagnosis and treatment of my mastocytosis?
There are several mastocytosis centers in Germany that specialize in the treatment of mastocytosis. You can find a center near you at https://mastozytose.net/zentren-und-kontakte/.
Can I change my "My story" information later?
Yes, you can change your details at any time, for example if you have new test results. To do so, tap on "My story", locate the appropriate area and tap on "Edit". Please remember to save your changes.
Write us!
Do you have any questions about our app for mastocytosis patients?
Do you have any feedback for us? We are always looking to improve.
Help us improve MASTHAVE®! We look forward to hearing from you.
MASTHAVE® App
For patients with mastocytosis
masthave@ga2len.network
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